Patient engagement can enhance the quality of the research and clinical care and help empower patients involved in these activities. However, there is limited evidence on the impact of patient engagement on a patient’s long-term recovery. This project aims to explore the impact of this engagement in sepsis survivors and family members of individuals who experienced sepsis through a case study of the Sepsis Canada Patient Advisory Council and the University of British Columbia Action on Sepsis Patient Advisory Councils. The results will provide new evidence on how sepsis survivors define long-term recovery and how being involved in patient advisory councils can positively or negatively impact long-term recovery. These results are likely to be broadly applicable to survivors and family members of individuals who have experienced other critical illnesses. In future studies, we will use the results to create new resources that can be used to facilitate sustainable, authentic, and equitable partnerships for patient-oriented research.
Our preliminary results were presented at the 2024 Putting Patients First Conference. You can view the poster here.