Impacts of patient advisory councils on recovery for sepsis survivors: a case study

Patient engagement can enhance the quality of the research and clinical care and help empower patients involved in these activities. However, there is limited evidence on the impact of patient engagement on a patient’s long-term recovery. This project aimed to explore the impact of this engagement in sepsis survivors and family members of individuals who experienced sepsis through a case study of the Sepsis Canada Patient Advisory Council and the University of British Columbia Action on Sepsis Patient Advisory Councils. The results provide new evidence on how sepsis survivors define long-term recovery and how being involved in patient advisory councils can positively impact long-term recovery. 

Our preliminary results were presented at the 2024 Putting Patients First Conference. You can view the poster here.

Read our recently published paper in PLOS One for more details on the study:

Sheehan M, Novakowski SK, Sheikh F, Korstad S, MacDonald K, Sacks J, Russell K, Bergeron M, Vidler M. (2025) Impacts of patient advisory councils on recovery for sepsis survivors: a case study. PLOS ONE 20(10): e0334057. https://doi.org/10.1371/journal.pone.0334057

Knowledge Translation Materials

Video: Benefits of engaging in patient advisory councils

English version - voiceover by Shannon McKenney, Sepsis Survivor

French version - voiceover by Marie-Maxime Bergeron, Sepsis Survivor

Infographics:
  • Improving patient engagement experiences in health research networks

English ver. French ver.


First Nations land acknowledegement

Action on Sepsis operates on the traditional, ancestral, and unceded territory of the Coast Salish peoples — xʷməθkʷəy̓əm (Musqueam), Sḵwx̱wú7mesh (Squamish), and Səl̓ílwətaʔ/Selilwitulh (Tsleil-Waututh) Nations. We invite everyone to reflect on the traditional territories and land that they currently work and live on.


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